A Blueprint for Change: Guiding Principles for a System of Services for Children and Youth with Special Health Care Needs (CYSHCN) and their Families – The Role of Transition and Workforce
This activity has been archived and credit is no longer available.
This presentation was recorded from the 23rd Annual Chronic Illness and Disability Conference: Transition from Pediatric to Adult-Based Care that took place in October 2022.
Skill preparation and planning for healthcare transition for children and youth with special healthcare needs is inadequate. Less than fifty percent of families nationwide indicate that their children with special healthcare needs have received the services necessary to make appropriate transitions to adult healthcare, work, and independence. One of the major hurdles to receiving this care is the lack of a workforce, including physicians, nurses, social workers, mental health providers and all who provide services to youth and young adults with special healthcare needs trained to provide the services necessary to make the healthcare transition. There is a strong need for physicians to have the knowledge and skills to provide the services needed to facilitate a successful transition from pediatric to adult-based care and services.
Activity Information
This activity has been archived and credit is no longer available.
Needs Statement
Skill preparation and planning for healthcare transition for children and youth with special healthcare needs is inadequate. Less than fifty percent of families nationwide indicate that their children with special healthcare needs have received the services necessary to make appropriate transitions to adult healthcare, work, and independence. One of the major hurdles to receiving this care is the lack of a workforce, including physicians, nurses, social workers, mental health providers and all who provide services to youth and young adults with special healthcare needs trained to provide the services necessary to make the healthcare transition. There is a strong need for physicians to have the knowledge and skills to provide the services needed to facilitate a successful transition from pediatric to adult-based care and services.
Because of increased awareness of transitioning to adult-based care, clinicians are required to update their knowledge of the changing strategies for integrating emerging adult-based care into practice.
Educational Objectives
At the conclusion of this activity, participants should be able to:
- Explain the Blueprint for Change: A National Framework for a System of Services for Children and Youth with Special Health Care Needs.
- Identify the four critical areas to strengthen the system of care .
- Summarize workforce development through interdisciplinary training in Health Care Transition (HCT) and Children and Youth with Special Health Care Needs (CYSHCN) to help improve the system of care.
Target Audience
Professional Categories
- Physicians
- Nurses
- Other Health Professionals
- Patients/Consumers
Specialties
- Family and Community Medicine
- Internal Medicine
- Pediatrics
Interest Groups
- Hospital Medicine
- Intellectual and Developmental Disabilities
- Primary Care
Accreditation/Credit Designation
Baylor College of Medicine is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
Baylor College of Medicine designates this live activity for a maximum of 1.0 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Activity Director
-
Albert Hergenroeder, M.D.
Chief, Adolescent Medicine Service and Adolescent Medicine Clinic
Texas Children's Hospital
Peer Reviewer
-
Albert Hergenroeder, M.D.
Chief, Adolescent Medicine Service and Adolescent Medicine Clinic
Texas Children's Hospital
Term of Approval
October 1, 2022 through October 31, 2024. Original release date: July 1, 2023.
Disclosure Policy
Baylor College of Medicine (BCM) is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education (CME) for physicians. BCM is committed to sponsoring CE activities that are scientifically based, accurate, current, and objectively presented.
In accordance with the ACCME Standards for Commercial Support, BCM has implemented a mechanism requiring everyone in a position to control the content of an educational activity (i.e., directors, planning committee members, faculty) to disclose any relevant financial relationships with commercial interests (drug/device companies) and manage/resolve any conflicts of interest prior to the activity. Individuals must disclose to participants the existence or non-existence of financial relationships at the time of the activity or within 24 months prior.
In addition, BCM has requested activity faculty/presenters to disclose to participants any unlabeled use or investigational use of pharmaceutical/device products; to use scientific or generic names (not trade names) in referring to products; and, if necessary to use a trade name, to use the names of similar products or those within a class. Faculty/presenters have also been requested to adhere to the ACCME's validation of clinical content statements.
BCM does not view the existence of financial relationships with commercial interests as implying bias or decreasing the value of a presentation. It is up to participants to determine whether the relationships influence the activity faculty with regard to exposition or conclusions. If at any time during this activity you feel that there has been commercial/promotional bias, notify the Activity Director or Activity Coordinator. Please answer the questions about balance and objectivity in the activity evaluation candidly.
All of the relevant financial relationships listed for these individuals have been mitigated.
Disclosures
The following individual(s) has/have reported financial or other relationship(s) with commercial entities whose products/services may relate to the educational content of this activity:
Presenters
-
Treeby Brown, M.A.
Deputy Director, Division of Services for Children with Special Health
Health Resources and Services Administration
Disclosure:
Nothing to disclose.
-
Lauren Ramos, M.P.H.
Director, Division of Maternal and Child Health Workforce Development
Health Resources and Services Administration
Disclosure:
Nothing to disclose.
Activity Director
-
Albert Hergenroeder, M.D.
Chief, Adolescent Medicine Service and Adolescent Medicine Clinic
Texas Children's Hospital
Disclosure:
Nothing to disclose.
Planning Committee Members
-
Cecily Betz, Ph.D., R.N.
Associate Professor of Pediatrics
Children's Hospital of Los Angeles
Disclosure:
Nothing to disclose.
-
Jackie Czyzia, M.P.H.
Senior Program Manager, Maternal Child Health Technical Assistance
Association of University Centers on Disabilities
Disclosure:
Nothing to disclose.
-
Amanda Garey, Ph.D., R.N.
Accredited Provider Program Director
Baylor College of Medicine, Texas Children's Hospital
Disclosure:
Nothing to disclose.
-
Scott Garner, M.B.A.
Administrative Director
Robbins Institute for Health Policy and Leadership, Baylor University
Disclosure:
Nothing to disclose.
-
Ivy Goldstein
State Children with Special Health Care Needs Coordinator
Texas Department of State Health Services
Disclosure:
Nothing to disclose.
-
Cynda Green
Pathways to Adult Transition Team Lead
Texas Parent to Parent
Disclosure:
Nothing to disclose.
-
Albert Hergenroeder, M.D.
Chief, Adolescent Medicine Service and Adolescent Medicine Clinic
Texas Children's Hospital
Disclosure:
Nothing to disclose.
-
Elaine Hime
Senior Community Relations Outreach Specialist
Texas Children’s Health Plan
Disclosure:
Nothing to disclose.
-
Siripoom Vudhipoom McKay, M.D.
Assistant Professor
Baylor College of Medicine
Disclosure:
Nothing to disclose.
-
Margaret McManus, M.H.S.
President
The National Alliance to Advance Adolescent Health
Disclosure:
Nothing to disclose.
-
Diane Murrell, M.S.W.
Medical Social Worker
Texas Children's Hospital
Disclosure:
Nothing to disclose.
-
Diane Scardino, M.B.A., M.H.A.
Vice President
Texas Children’s Hospital
Disclosure:
Nothing to disclose.
-
Shelley Townsend, M.S.W.
Program Director/Family Support Partner
University of Houston
Disclosure:
Nothing to disclose.
-
Chava White, L.M.S.W.-A.P.
Advance Practice Social Worker
Baylor St. Luke’s Medical Center
Disclosure:
Nothing to disclose.
-
Audrey Young, M.P.H.
Director, Title V Children and Youth with Special Health Care Needs
Texas Department of State Health Services
Disclosure:
Nothing to disclose.
Peer Reviewer
-
Albert Hergenroeder, M.D.
Chief, Adolescent Medicine Service and Adolescent Medicine Clinic
Texas Children's Hospital
Disclosure:
Nothing to disclose.
Presenters:
Treeby Brown, M.A.
Deputy Director, Division of Services for Children with Special Health Health Resources and Services Administration